Pulmonary Fibrosis Caregiver Communities

The support of others can make dealing with a pulmonary fibrosis diagnosis just a little bit easier. There are several ways PF caregivers can connect with others.

Caring for Pulmonary Fibrosis Online Support Community

Connecting with others in your shoes is an invaluable source of support and practical help. The Lung Association has free online support communities on Inspire called Caring for Pulmonary Fibrosis and Living with Pulmonary Fibrosis. Sign up today to join a virtual support community.

Better Breathers Club

Better Breathers Clubs are in-person support groups that teach you ways to cope with lung disease and provide pulmonary fibrosis support from others who share in your struggles. Caregivers are welcome at these groups, with or without your loved one. These support groups give you the tools you need to live the best quality of life possible.

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The Patient Caregiver Network (PCN) is your way to connect with caregivers, lung health advocates and others living with interstitial lung disease. Gain access to webcasts, the latest news and Lung HelpLine experts and take control of your lung health.

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When you are diagnosed with an interstitial lung disease like pulmonary fibrosis, you will have a lot of questions. You are not alone. Through the Patient & Caregiver Network, you can connect with other patients, caregivers, and lung health advocates. Join the network to have access to webcasts, newsletters, experts from our Lung Helpline, online support communities, and more. Register today at lung.org/pcn.

Patient & Caregiver Network

The Patient & Caregiver Network is a nationwide, online patient support program providing direct access to education, support and connection to others also living with lung disease.

Other Pulmonary Fibrosis Support Groups

Contact your local Lung Association and ask your healthcare team about any other PF support groups in your area. 

The Pulmonary Fibrosis Foundation offers a connection to local, online and telephone-based support groups and communities for patients and caregivers.

Page last updated: May 15, 2023

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