I am currently LIVING with lung cancer. That is something I couldn't have imagined 7 1/2 years ago when I was first diagnosed with stage IV NSCLC. The only reason I am still here is due to past research that led to the current treatment modalities to treat NSCLC. A mere decade ago treatment was much different and outcomes were rather bleak.
Lung cancer is a sneaky disease. The onset of symptoms varies widely and many times diagnosis does not come until the cancer has spread, making it the leading cause of cancer deaths still today.
My story began with a simple persistent cough which we assumed was sinus/allergy related. The cough became more prominent and after 8 weeks a chest x-ray was ordered. From there, a CT of my chest which revealed a tumor in my left lower lobe of my lung.
Brochoscopy and biopsy along with a barrage of other tests confirmed that I indeed had stage IV NSCLC with EGFR 19 mutation. My initial scans showed the originating tumor in my left lower lobe, a tumor in my hilar region, activity on my adrenal gland and 27 tumors in my brain. Estimated survival at the time was 3-6 years. . . .
Due to the advancements in treatment modalities and biomarker testing, I was able to begin a targeted therapy. I am fortunate to be on my first line treatment of Osmertinib for 7 plus years now. I have had 2 additional tumors which were both treated with radiation. I am currently NED and am now focused on awareness, early detection, and support for those newly diagnosed with lung cancer.
This disease is spreading EXPONENTIALLY and is affecting more younger women at an alarming rate. Education for medical professionals and awareness to the public are key in our fight.
All you need to be at risk of developing lung cancer is a set of lungs! I didn't "fit" the picture of anyone at risk. Many people don't. Stay alert. Advocate for yourself.
In the near future we can hope that NSCLC will be seen as a chronic disease and not a death sentence. There is HOPE. I am living proof!
