Questions to Ask Your Doctor About Primary Ciliary Dyskinesia

Making notes before your or your child’s visit, as well as taking along a trusted family member or friend, can help you through the first appointment with your doctor.

  • Could I or my child have PCD? How serious is the diagnosis?
  • Should I consult a specialist?
  • What tests do you suggest?
  • I've heard a lot about "airway clearance"—can you explain that a little more?
  • What treatment do you suggest? Are there any side effects?
  • Do I or my child need intravenous antibiotics?
  • Will a lung transplant be needed at any stage?
  • Do I need to take any special precautions to manage my/my child’s condition?

Page last updated: March 6, 2020

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