I also got sick in 2008 and became fatigued, coughing - just achy everywhere, so I went to my doctor and was told I had pneumonia. I went back after a dose of antibiotics after getting no relief and was given a stronger dose and told that it looks like I had interstitial changes. I found a pulmonary doctor who specializes in interstitial lung diseases and with my history of Sjogren, RA, and acid reflux and multiple bouts of bronchitis, I most likely have pulmonary fibrosis. I went to my RA Doctor who started me on methotrexate and a biologic 8 years later I feel better and stabilized on 4lpm 02 and RA meds. My family has a great support to me thru out these years. I go to pulmonary rehab and Breathmatters, a local lung disease support group. I learned what I am allergic to and stay away from them and I haven't had any bad colds or pneumonia. Stay away from children and people with respiratory infections, exercise and just keep my lungs clear. That is my job now: I strengthen my respiratory muscles, take deep breaths and wear a mask when I need to and talk with my support group family and friends. I know I am not alone in this.
First Published: June 14, 2016
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