Find Out All You Can About PAH
Talk to your healthcare provider about your diagnosis to better understand what caused your PAH and how it will impact your life.
Get organized. Keep a file with all of your PAH information in one location. This will help you as you make your treatment decisions and manage your disease.
- Keep a list of your healthcare providers and their contact information
- Keep a list of your medications
- Use a calendar to track appointments and know when to schedule follow-up appointments
- Write down questions you want to ask your healthcare provider prior to appointments
- Monitor your symptoms to help determine if your current treatment is working for you
Prepare to Make Treatment Decisions
Get an appropriate referral. Because PAH is such a rare disease, it is extremely valuable to get a referral to a specialist at an accredited center to ensure you are getting the most up-to-date treatment options.
Know your treatment options. Although there is no cure for PAH, there are medications and procedures that can slow the progression of the disease and improve your quality of life therefore it will be vital for you to work closely with your healthcare provider to determine the correct treatment plan.
Connect with Others
No person facing a chronic lung disease should go through it alone. There are online and in-person support groups available. Finding a support group early in your journey will provide you with more opportunities to get information about your disease, empower you to better manage your disease, and give you the support you need.
Talk to an Expert
Our Lung HelpLine is staffed by registered nurses and respiratory therapists ready to help answer your questions about PAH. Connect with us by phone, email or live chat.
Reviewed and approved by the American Lung Association Scientific and Medical Editorial Review Panel.
Page last updated: May 31, 2023