There are 200 different types of pulmonary fibrosis (PF) that can make it difficult to breathe. To help those living with PF, and in honor of Pulmonary Fibrosis Awareness Month in September, the American Lung Association is raising awareness about the disease and resources available to patients and loved ones through our Better Breathers Network.
Better Breathers Network is a virtual patient focused environment to share meaningful resources designed to support the nearly 37 million adults living with a chronic lung disease. Through this nationwide network, patients and loved ones can access education, support and a sense of connection with other adults also living with chronic lung disease.
PF is a form of interstitial lung disease that causes scarring in the lungs. The most common type of PF is idiopathic pulmonary fibrosis (IPF), which has no known cause.
“There is no cure for pulmonary fibrosis, however there are current treatments aimed at preventing more lung scarring and helping you stay active and healthy,” said Albert Rizzo, M.D., chief medical offer for the American Lung Association. “Support from other people facing PF is also very important, which is why our Better Breathers Network is a critical resource for people and their families living with the lung disease.”
By becoming a member of the Network, individuals can access webinars, videos and local support groups as well as more learning opportunities. Anyone can register for free and after signing up will receive:
Access to the Better Breathers Network Resource Library which includes top tips on managing lung disease, handouts, and on-demand educational videos
Patient focused informational newsletters
Invitations to regularly scheduled, virtual Better Breathers Network meetings
Membership card and welcome packet
For more information about the Better Breathers Network and to sign up, visit Lung.org/bbn.
The Better Breathers Network is generously sponsored Inspire, the vital health community where millions of patients and caregivers come to share personal health experiences and find support for one another.
For media interested in speaking with an expert about pulmonary fibrosis and our Better Breathers Network, contact the American Lung Association at [email protected] or at 312-940-7001.
About the American Lung Association
The American Lung Association is the leading organization working to save lives by improving lung health and preventing lung disease through education, advocacy and research. The work of the American Lung Association is focused on four strategic imperatives: to defeat lung cancer; to champion clean air for all; to improve the quality of life for those with lung disease and their families; and to create a tobacco-free future. For more information about the American Lung Association, which has a 4-star rating from Charity Navigator and is a Platinum-Level GuideStar Member, call 1-800-LUNGUSA (1-800-586-4872) or visit: Lung.org. To support the work of the American Lung Association, find a local event at Lung.org/events.