If you are facing pulmonary fibrosis, there are communities, groups and organizations that can help you along the way.
One of the most important parts of living well with pulmonary fibrosis is connecting with others in your shoes. Check out American Lung Association support groups and ask your healthcare team about PF groups in your area.
- Online Support Communities
The American Lung Association has online communities on Inspire.com for pulmonary fibrosis patients and caregivers. Individuals register to join a community. Members can choose their level of participation and engagement. This online forum is a place for members to discuss how pulmonary fibrosis is affecting them and share their life experience with peers. It is also a great place to get tips on oxygen use and living life with PF.
- Better Breathers Club
Better Breathers Clubs teach you ways to cope with lung disease and provide pulmonary fibrosis support from others who share in your struggles. These in-person support groups give you the tools you need to live the best quality of life you can.
- Better Breathers Club Network
Join the Better Breathers Network, which is a nationwide, online patient support program providing direct access to education, support and connection to others also living with chronic lung disease.
Talk to an Expert
Talk to our trained lung health professionals at the American Lung Association Lung HelpLine. Our service is free and we are here to help you with your questions about PF. Learn more.
Get Help to Stop Smoking
We're here for you every step of the way with tools, tips and support to quit smoking. Learn more.
Additional PF Resources to Assist with Treatment and Care
Resources exist that can connect you with more information and assist with your treatment. When you are looking for additional pulmonary fibrosis resources, make sure your information is coming from a trusted source such as the resources recommended below.
Page last updated: June 8, 2021