Newly Diagnosed with PAP?

Take These Important First Steps

• If you have been diagnosed with PAP, learn more about what your treatment options are and how to best manage your disease.
• It will be important for you to work closely with your healthcare provider to determine what treatment course is right for you as soon as possible. Because PAP is such a rare disease, it is valuable to get a referral to a pulmonologist or specialist familiar with PAP to ensure you are getting the most up-to-date treatment options. 

Take Care of Yourself 

• When you are diagnosed with PAP, you are at a greater risk for developing other infections, such as mycobacterium tuberculosis or histoplasmosis. It is important for you to take care of your health. You will want to stay up-to-date on vaccinations that your healthcare provider recommends.
• Connect With Others: No person facing a chronic lung disease should go through it alone. There are online and in-person support groups available. Finding a support group early in your journey will provide you with more opportunities to get information about your disease, empower you to better manage your disease, and give you the support you need.
  • Better Breathers Clubs (in-person and virtual support groups)
  • Patient & Caregiver Network (online support network)
  • Living With Lung Disease (online peer support community)