An Interesting Journey...
Started with a focal visual seizure which precipitated brain MRI revealing 3 brain tumors measuring 1cm, 1.5cm and 2.5cm over the optic chiasma. Chest CT revealed 1cm tumor in the LUL (left upper lobe).
2 weeks later stereotactic brain surgery to alleviate seizures.
2 weeks post-op, untreated pulmonary embolus (PE).
1 month post-op, 2 doses of chemotherapy.
2 months post-op, R VATS confirms new tumor is a PE.
3 months post-op, LUL wedge resection.
Adenocarcinoma confirmed by brain and lung samples from LUL.
1 year post-Dx, large brain tumor regrew.
GammaKnife for all 3 brain tumors.
Astonishingly, despite starting as stage 4, all treatment completed November, 2000.
No further treatment of any kind for the past 13 years, 11/30/13 was my 14th anniversary since Dx.
Self-advocacy and aggressive treatment is the key.