This website uses cookies. By continuing you are agreeing to our privacy policy.

  • Share this page:


Andrea S

In September of 2014, my twin daughters were born 12 weeks early. They both spent many months in the Neonatal Intensive Care Unit, fighting to grow and strengthen their lungs. They were eventually both diagnosed with chronic lung disease, and both required tracheostomies to help them breathe.

While Zooey began to thrive after receiving her trach, Lily still had a long road ahead of her. She later had a lung biopsy and was diagnosed with severe chronic lung disease. She was unable to breathe without assistance from a ventilator and oxygen, and we were trained to learn how to take care of her at home with a home ventilator.

She has fought so hard to breathe since she was born, something most of us take for granted. Over the last year and a half since she has been home, she has been able to get up the strength to no longer require a ventilator to breathe, and to only need oxygen on occasions.

Lung disease has affected our lives in ways we never could have imagined.. Many times we thought we would lose our children, but they have preserved though so many difficulties.

I feel it is important to raise awareness to chronic lung disease, especially when others may not understand the reasons that a small child would have such medical equipment/special needs.

Despite all that Zooey and Lily have been through in their 2 years of life, they are some of the happiest kids I have ever seen. They may have tracheostomies, and lots of different medical equipment, but they can run and play and have fun just the same as any other toddler, and that is what I would like the world to see.

First published: November 1, 2016

  Share this story:
Tell your story View all stories Donate

American Lung Association is solely responsible for content.

Hero stories are the point of view of the Hero and not necessarily the American Lung Association. The Lung Association does not endorse any specific provider, facility or treatment.


Donate to LUNG FORCE

Get Involved


Events Near Me

Lung Health Barometer


Sponsors & Supporters


Sign up for updates

Get the latest news and information on the fight against lung cancer and for lung health.

Red button with telephone
Ask An Expert

Questions about your lung health? Need help finding healthcare? Call 1-800-LUNGUSA.

Get help
Red button of two hand prints
We need your generous support

Make a difference by delivering research, education and advocacy to those impacted by lung disease.

Button of turquoise LUNG FORCE swirl

LUNG FORCE unites women and their loved ones across the country to stand together in the fight against lung cancer.

Get involved
Join the fight for healthy lungs and healthy air.
Donate Now.