Parental Response Using a Daily Digital Diary to Capture Respiratory Symptoms in Young Children with Recurrent Respiratory Tract Illnesses (American Lung Association [ALA] Novel Digital Diary [ANDDi])
The ACRC network is studying if parents of young children will complete surveys about their child’s breathing problems sent to them by a text message to their smart phone or by email.
October 1, 2018 - March 31, 2020
We want to find out if parents of young children will complete surveys sent to them by a text message to their smart phone or by email about their child's breathing problems.
We will also send a satisfaction survey at the end of the study to find out what worked or didn't work with the survey process from the parent's perspective and any feedback they may have for improvement.
How does the study work?
This study will last about 4 months. There is only one visit to the study site to enroll in the study and have the study procedures explained. Parents of young children who enroll in the study will be asked to use their smart phones to receive a daily survey by text messages or their email. The surveys are answered by tapping a response on their smart phone or in the email. This daily survey asks if their child is having breathing problems. If there are no problems, they will then get the same question the next day.
If their child is having breathing problems that day, then more questions are asked to help the parent determine if they think their child is getting sick. If their child is getting sick, then they will receive a Sick Day survey by text or email each day while their child is having symptoms. The satisfaction survey at the end of the study is also sent by text or email.
Who is eligible to enroll in the study?
Parents or caregivers of children who are 1 to 5 years old who have mild to moderate persistent asthma can participate in this study. Parents must have a smart phone (internet connected) and be willing to receive text messages and/or have access to email messages. Also, the parent must have daily contact with their child while in the study in order to assess breathing problems or other respiratory symptoms each day. Parents must be able to speak and read English.
Does it cost anything to enroll?
It is free to enroll in this study. Study participants will receive payments for the activities they complete while participating in the study. There will be no charge for study visits or clinical examinations.
The study is sponsored by the American Lung Association. If you are interested in learning more about joining this important study, please contact the center closest to you.
Below is a list of recruiting centers.
- Baylor College of Medicine
- Duke University Medical Center
- The Illinois Consortium
- University of Michigan
- Nemours Children's Health System
- National Jewish Health
- Washington University/St. Louis University
- The University of Alabama Lung Health Center
- University of Arizona
If you are interested in participating in this trial, please contact the center nearest you at the link below.
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