This website uses cookies. By continuing you are agreeing to our privacy policy.

LUNG FORCE
 
  • Share this page:

LUNG FORCE Heroes

Dena A.

I was diagnosed with sarcoidosis in October, 2014. I had no idea I had it until I went to the ER for a car accident and they did a chest x-ray. That's when they found the hilar and medistinal lymphadenopathy, which turned out to be sarcoidosis by biopsy.

This past year has been the worst for me. Almost a year ago exactly I began complaining of severe fatigue (to the point I was sleeping 18 hrs a day). I saw my PCP multiple times and after the labs she did were normal, she said it was depression. I've dealt with depression since I was 17 (I'm 52) and I kept telling her it wasn't depression but because she had no other explanation for it, she didn't believe me.

Then I began having severe SOB and joint pain. I've been treated with 60mg of prednisone daily for about 6 months causing me to gain about 40 lbs and to develop diabetes. I'm also on methotrexate and have gotten Remicade infusions. I just found out today that I may have a myopathy, possibly related to the steroids or sarcoidosis. This month I transferred my care to Temple Lung Center and their sarcoidosis program.

I'm frustrated because my quality of life has really deteriorated--fatigue, pain and SOB--rule my life right now. I really want to meet others who have sarcoidosis and understand the trials and tribulations of this disease. I've reached out on Facebook to find others but have had no luck. I try to educate myself as much as possible and read everything I find. My goal is to get my symptoms under control and be able to be active socially again.

First published: March 16, 2018

  Share this story:
 
Tell your story View all stories Donate

American Lung Association is solely responsible for content.

Hero stories are the point of view of the Hero and not necessarily the American Lung Association. The Lung Association does not endorse any specific provider, facility or treatment.

About LUNG FORCE

Donate to LUNG FORCE

Get Involved

LUNG FORCE Heroes

Events Near Me

Lung Health Barometer

Media

Sponsors & Supporters

Shop LUNG FORCE

Sign up for updates

Get the latest news and information on the fight against lung cancer and for lung health.

Red button with telephone
Ask An Expert

Questions about your lung health? Need help finding healthcare? Call 1-800-LUNGUSA.

Get help
Red button of two hand prints
We need your generous support

Make a difference by delivering research, education and advocacy to those impacted by lung disease.

Button of turquoise LUNG FORCE swirl
What is LUNG FORCE?

LUNG FORCE unites women and their loved ones across the country to stand together in the fight against lung cancer.

Get involved
Join the fight for healthy lungs and healthy air.
Donate Now.