American Lung Association and Foundation for Sarcoidosis Research Team Up to Raise Awareness of Sarcoidosis

Providing answers, education and support during Sarcoidosis Awareness Month is more important than ever during COVID-19 pandemic

This April, for Sarcoidosis Awareness Month, the American Lung Association and the Foundation for Sarcoidosis Research (FSR) will be partnering to raise awareness and provide opportunities for those affected by sarcoidosis to learn more about how they can protect their health.

Individuals with the rare autoimmune disease sarcoidosis live with ongoing concerns about their health vulnerabilities. The COVID-19 pandemic presents new risk and uncertainty for those with compromised immune systems. Since 90% of sarcoidosis patients have lung impacts, it is more important than ever to raise awareness about this disease in the face of COVID-19 and its major threats to lung health.

Sarcoidosis is a disease of unknown origin that causes the immune system to overreact, which can lead to health issues, including lung damage, skin rashes and eye disease, and can affect other organs of the body. With good medical care, most symptoms of sarcoidosis are controlled. The goal of treatment is remission, meaning that the condition is no longer causing any complications. In severe cases, sarcoidosis can be life-threatening if it progresses to heart or severe lung disease. It is important for people living with sarcoidosis to assess all of their treatment options through an open dialogue with their physician. Individuals on immunosuppressant medications due to sarcoidosis might have an increased risk of developing more severe complications of COVID-19 if they contract the illness. 

Throughout April, the two non-profit partners will be offering new educational and support resources for sarcoidosis patients and their caregivers, as well as clinicians who are interested in sarcoidosis education and awareness. Both organizations are also dedicated to keeping patients informed about COVID-19 as more science-based evidence about the illness becomes known. April’s Sarcoidosis Awareness Campaign is supported in part by grant funding from Mallinckrodt Pharmaceuticals.

Patients and caregivers can learn more about sarcoidosis and access these resources at Lung.org/sarcoidosis or StopSarcoidosis.org. Registered nurses, respiratory therapists and counselors are also available for one-on-one support through the Lung Association’s Lung HelpLine at 1-800-LUNGUSA or online chat at Lung.org/helpline. New this year, the Lung Association is offering virtual Zoom meetups as part of its new Betters Breathers Network. The Foundation for Sarcoidosis’ Patient Navigators are available to provide one-on-one support for those newly diagnosed with sarcoidosis, in the diagnosis process, experiencing their first flare, and/or new organ manifestation. Learn from global experts in sarcoidosis opportunities and engage in our support and wellness programs by visiting The Foundation for Sarcoidosis’ Events Page.

For more information, contact:

Allison MacMunn
312-801-7628
[email protected]

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