This website uses cookies. By continuing you are agreeing to our privacy policy.

Questions to Ask Your Doctor About Lymphangioleiomyomatosis (LAM)

Making notes before your visit, as well as taking along a trusted family member or friend, can help you through the first appointment with your doctor. Below are some questions to ask your healthcare provider.

  • How do we know that I have LAM?
  • How do we know that I do not have the genetic condition, the tuberous sclerosis complex (TSC-LAM)?
  • At what point and how often will I need imaging studies of my abdomen to assess for tumors in other organs?
  • What are the signs of a pneumothorax and lung collapse?
  • Is air travel safe for me?
  • What do I do if my breathing gets worse?
  • At what point will I need oxygen?
  • When should I consider starting pulmonary rehabilitation?
  • When will you start me on treatment control the disease?
  • Will I ever be able to get pregnant? Will my children also be affected?
  • What form of birth control is safe?
  • At what point should we be discussing lung transplant, and what should I expect?
  •  Does LAM come back in the transplanted lung?
  •  Is air travel safe for me?

    This content was developed in partnership with the CHEST Foundation, the philanthropic arm of the American College of Chest Physicians.

    Page Last Updated: March 13, 2018

    Red button with telephone
    Ask An Expert

    Questions about your lung health? Need help finding healthcare? Call 1-800-LUNGUSA.

    Get help
    Red button of two hand prints
    We need your generous support

    Make a difference by delivering research, education and advocacy to those impacted by lung disease.

    Button of turquoise LUNG FORCE swirl
    What is LUNG FORCE?

    LUNG FORCE unites women and their loved ones across the country to stand together in the fight against lung cancer.

    Get involved
    Join the fight for healthy lungs and healthy air.
    Donate Now.