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Living With Lymphangioleiomyomatosis (LAM)

LAM is a chronic disease, meaning you may have symptoms or require treatment for your lifetime.

What to Expect

You will require multiple repeat lung function testing and imaging after your diagnosis. If your lung function becomes very poor, you will need to go through a process for evaluation for transplantation if your doctor feels you are eligible. Transplantation requires taking multiple medications for life and continued testing and doctor visits.

Managing LAM

Your doctor will partner with you to help manage your LAM. There are several options for treatment of this disease in including sirolimus, oxygen therapy and pulmonary rehabilitation. Learn more about treating LAM.

Finding Support

The Lung Association recommends patients and caregivers join our Living with Lung Disease Support Community to connect with others facing this disease. You can also call the Lung Association's Lung HelpLine at 1-800-LUNGUSA to talk to a trained respiratory professional who can help answer your questions and connect you with additional support.

Additional information is available at:

    This content was developed in partnership with the CHEST Foundation, the philanthropic arm of the American College of Chest Physicians.

    Page Last Updated: March 13, 2018

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