Mission Moment September 2018
(September 17, 2018)
Stand Up To Cancer: The huge Stand Up To Cancer (SU2C) annual televised event aired on all major networks on Friday, September 7. The American Lung Association, through our LUNG FORCE initiative, is proud to be a both a supporter and collaborator in this important cancer-fighting effort, including our two lung cancer research partnerships with SU2C and the LUNGevity Foundation. The Lung Association was represented at the event by LUNG FORCE Heroes Danielle Garcia and Marlo Palacios, along with Jill Arnstein, Executive Director of the Lung Association in California and Cheryl Calhoun, national board member.
LUNG FORCE Hero: Matthew H. shares the story of his wife, and mother of four, Marilyn, who faced small cell lung cancer with “beauty and grace.” Read her story and you will understand why raising lung cancer awareness is so important.
Join a LUNG FORCE Event: We stand together against lung cancer and for lung health. There are countless ways to get involved with LUNG FORCE and our fight against lung cancer. From gatherings to seminars to fun fundraisers, LUNG FORCE holds many kinds of events across the country to raise awareness and support. Find an event near you.
American Ninja Warrior Najee Richardson is National Climb Ambassador: We are thrilled to announce that Najee Richardson, American Ninja Warrior finalist “The Flying Phoenix” will be our first National Fight For Air Climb Ambassador. Sharing his experiences living with asthma, Najee is teaming up with the Lung Association to raise awareness of lung disease and prove to young people that asthma doesn’t have to slow you down. Najee announced this new collaboration with the Lung Association on his social media channels after the finale aired on September 10. Najee will appear at four Climbs in 2019. Learn more.
ACRC Network Clinical Outcomes: The American Lung Association Airways Clinical Research Centers (ACRC) conducts large clinical trials to provide vital information about caring for people who have asthma and COPD. Since its inception in 1999, the ACRC has made many important contributions to the lives with people with asthma. In 2015 this work expanded to include COPD, positively impacting the lives of millions of Americans each and every day. Our work is changing the nature of asthma and COPD patient care across the United States. Our recently published studies include:
- Test Performance Characteristics of the AIR, GAD-7 and HADS-Anxiety Screening Questionnaires for Anxiety in Chronic Obstructive Pulmonary Disease
- Risk Factors for Asthma Exacerbation and Treatment Failure in Adults and Adolescents with Well-Controlled Asthma during Continuation and Step-Down Therapy
- Effect of Obesity on Sinonasal Disease in Asthma
Increasing the Number of Suitable Donor Lungs for Transplantation: Currently, only 26 percent of lungs from multi-organ donors are used for transplantation; the majority of potential donor lungs are rejected due to poor function. Through funding by the American Lung Association, David Hall, M.D., of the University of Florida, is exploring a novel technique to increase the number of lungs suitable for transplantation.
We Need Your Feedback on our Asthma Resources: If the American Lung Association has helped you, or patients that you work with, take better manage asthma symptoms, we want to hear from you. Let us know if our asthma resources meet your needs and if you have any suggestions for improvement. If you are adult living with asthma or a caregiver, provide your feedback on our Adults with Asthma Resources Feedback Survey. If you are a health educator that delivers programs or materials on our behalf, please provide your feedback on our Asthma Partner/Educator Resources Feedback Survey.
Pulmonary Fibrosis Awareness Month: September is Pulmonary Fibrosis Awareness Month and one of the most important steps to living well with pulmonary fibrosis is growing your knowledge and circle of support. Use our new online constituents’ pathways on Lung.org/pf to download resources and videos, learn about treatment information, join a local Better Breathers Club, sign-up for continuing medical education (CME) courses and find local resources. In addition, our “Living with Pulmonary Fibrosis” and “Caring for Pulmonary Fibrosis” online communities are available for patients with pulmonary fibrosis and caregivers to connect with others close to the chronic lung disease.
Action on Healthy Air: This past month, we’ve been active on many fronts protecting the air we breathe. EPA proposed to replace the Clean Power Plan with the “Affordable Clean Energy” rule. We strongly oppose this rule, which EPA’s own analysis found could cause up to 1,400 premature deaths every year by 2030. We issued a statement from our CEO and another from ten health and medical organizations opposing the proposal. EPA is taking public comments until the end of October, so please stay tuned for how to engage.
Our defense of cleaner cars is also underway. The National Highway Transportation Safety Administration and EPA have opened the public comment period on the proposal to weaken cleaner cars standards. The deadline for comments is Oct. 23. The nation’s current cleaner cars standards are a huge success story. They’re widely popular, they’re practical, and most importantly, they’re working. Please tell the administration: do not roll back these protections. There will also be three public hearings on the proposal:
- Fresno, CA on Sept. 24, 2018
- Dearborn, MI on Sept. 25, 2018
- Pittsburgh, PA on Sept. 26, 2018
We’re working with Lung Association volunteers, staff and partners to ensure we make the health impacts of this proposal clear at all the hearings.
Limits on toxic emissions from power plants are also at risk. EPA is proposing to reconsider one of the nation’s most effective steps to clean up toxic emissions from power plants, the Mercury and Air Toxics Standard (MATS). The Lung Association led a national push to reduce the emissions of mercury and dangerous toxins that include arsenic, formaldehyde, and acid gases that form particle pollution that shortens lives. Since it was put it in place in 2011, MATS has reduced mercury emissions from power plants by 90 percent and acid gases by 88 percent. Any changes EPA makes to MATS could result in the reversal of a major public health success story which has helped to cut air pollution across much of the nation. The Lung Association and eight other health partners sent a letter the EPA, urging them to preserve these critical limits on these harmful toxins. We will continue to work vigorously to protect us from these toxins that are especially harmful to children.
2018 State and Local Advocacy Victories in Fight Against Tobacco Use: We have been proud to celebrate several important state and local advocacy victories in our ongoing fight to prevent and reduce tobacco use in 2018. These include:
- Massachusetts becoming the sixth state to pass a Tobacco 21 law and the first state to prohibit tobacco sales in all pharmacies.
- The District of Columbia and Oklahoma approving $2 and $1 per pack tobacco tax increases respectively.
- San Francisco voters overwhelmingly upholding an ordinance that prohibits the sale of all flavored tobacco products, including menthol in the city, despite a multi-million-dollar opposition campaign by the tobacco industry.
With your support, we look forward to continued advocacy successes in our effort to eliminate tobacco-caused death and disease the rest of 2018 and beyond.
Protecting Patients Who Use Supplemental Oxygen: On Sept. 6, we joined 19 other health organizations in urging the Centers for Medicare and Medicaid (CMS) services to protect patients who use supplemental oxygen. In detailed joint comments we asked CMS to use its statutory authority to take meaningful action to ensure that all patients who require supplemental oxygen receive the treatment they need. In the comments, we offered an in-depth analysis of the challenges faced by these patients and recommendations for practical solutions.
EACH Breath Blog
Oxygen therapy can be incredibly helpful for people facing lung disease. But getting started with the different devices can be daunting. That’s why we set out to create five new videos that cover the basics of using oxygen therapy. Our latest blog takes you behind the scenes on the shoot for these videos.
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Our donors are giving back in extraordinary ways, and their generosity makes our lifesaving mission possible. Each has a story, and a reason to give. One of them is Jim Ryan. When his wife, Marlene, passed away from pulmonary arterial hypertension in 2016, he wanted to do something that would honor her life and make a great impact for future generations. So, he became a Legacy Society Member. Read other donor stories and learn more compelling reasons to support lung health.
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