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American Lung Association and COPD Foundation Collaborate to Enhance COPD Research

(April 12, 2017)


The American Lung Association and the COPD Foundation are proud to join forces to conduct research that will help improve the quality of life of those living with chronic obstructive pulmonary disease.

  • COPD is a chronic lung disease that gets worse over time.
  • COPD is sometimes also called emphysema or chronic bronchitis.
  • Although COPD is both preventable and treatable, it's the third leading cause of death in the United States.
  • More than 11 million people in the U.S. suffer from COPD.

Originally focused on asthma alone, in 2015 the role of the American Lung Association's Airways Clinical Research Centers (ACRC) was expanded to include COPD treatment research and by working with the COPD Patient-Powered Research Network (COPD PPN) are able to make a greater impact on COPD research.

"Over 6,300 patients have participated in clinical trials through our Airways Clinical Research Centers, and we look forward to making an impact on thousands more with the support of the COPD PPRN," said Susan Rappaport, Vice President of Research and Scientific Affairs at the American Lung Association. "This important collaboration will aid our ACRC researchers at 24 different trial sites throughout the United States in conducting efficient studies toward our mutual goal of supporting better COPD management and improving treatment."

The COPD PPRN has a robust technological infrastructure that collects patient reported outcomes about their health history and quality of life while living with COPD. As a result, the registry can support studies, additional surveys and help facilitate clinical research by enabling researchers to connect directly to patients. The registry is overseen by a patient-led governing board that ensure patient priorities lead all research efforts.

Together ACRC and COPD PPRN will be able to conduct research across the country that will directly impact those living with COPD with a focus on improving quality of life, advancing our understanding of COPD and enhancing treatment options. Are you or someone you know living with COPD?  See more information on the clinical trials taking place in the ACRC and share these tips and tools on how to maintain a good quality of life while living with chronic obstructive pulmonary disease.

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