Questions to Ask Your Doctor About Lymphangioleiomyomatosis (LAM) | American Lung Association

Questions to Ask Your Doctor About Lymphangioleiomyomatosis (LAM)

Making notes before your visit, as well as taking along a trusted family member or friend, can help you through the first appointment with your doctor. Below are some questions to ask your healthcare provider.

  • How do we know that I have LAM?
  • How do we know that I do not have the genetic condition, the tuberous sclerosis complex (TSC-LAM)?
  • At what point and how often will I need imaging studies of my abdomen to assess for tumors in other organs?
  • What are the signs of a pneumothorax and lung collapse?
  • Is air travel safe for me?
  • What do I do if my breathing gets worse?
  • At what point will I need oxygen?
  • When should I consider starting pulmonary rehabilitation?
  • When will you start me on treatment control the disease?
  • Will I ever be able to get pregnant? Will my children also be affected?
  • What form of birth control is safe?
  • At what point should we be discussing lung transplant, and what should I expect?
  •  Does LAM come back in the transplanted lung?
  •  Is air travel safe for me?

    This content was developed in partnership with the CHEST Foundation, the philanthropic arm of the American College of Chest Physicians.


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