Living with PAH

In addition to medical and/or surgical treatments, people with PAH make lifestyle changes to better manage their family life, their ability to handle daily tasks, and to enjoy their lives.

Lifestyle changes may include small daily changes or more complex long-term changes regarding where and how you live, including:

  • Making laundry areas more accessible
  • Rearranging kitchen tools for easy access
  • Modifying showers/baths
  • Managing kids' daily needs, from transportation to school materials and meals
  • Arranging for regular and emergency child care
  • Securing handicapped parking
  • Managing family outings and home activities
  • Finding resources to ease daily and weekly house chores
  • Limiting use of stairs

Organizations like PH Central help people with PAH share information about lifestyle changes that can improve quality of life.